After 11 days at the NICU, Titus came home on September 27th!! It was such a day to celebrate, followed by a (teensy weensy) bit of anxiety on mama’s part. It was surprisingly comforting to know that we had a team of doctors and nurses there to step in if at any time Titus decided to stop eating or…. whatever else. In the end however, the excitement and relief far out weigh any anxiety I felt. That, and and amazing husband who continues to remind me that God is in control, and that Titus is doing great.
But I guess I should back up and take this a day at a time.
Monday, September 24th (1 Week Old)
Was a pretty ordinary day as far as Titus’ performance went. Titus nippled 45% which was around the same that he had done the two days prior.
The big things that happened this day were having visitors. His Aunt Tami stopped in bright and early (6:45ish) to visit for a while.
And then, later that afternoon, we had the kids come by and visit. Sadly, after the first two days in the NICU a nurse realized that our kids had not received their vaccinations (which had gone unnoticed up to this point) and they were no longer allowed to enter the NICU. Regardless, the kids ended up getting colds a day later any way, but it was VERY frustrating, to not be able to allow them to come and hold, touch or even visit their baby brother.
They did offer a family room there with a window into the playroom that the kids were able to look into and see Titus. They were there for about an hour and were able to talk to him through an intercom and to at least get to see his face.
That night, Tim and I gave Titus his first bath (by us) in the family room. I too, ended up getting a cold, so 99% of the time I was wearing a mask (which is why you will see very few pictures of me from this point on, as I preferred to be behind the camera)
Tuesday, September 25th
Another fairly “usual” day in the NICU, except that Tim was not able to join me on our afternoon trip. At his 6:30 feeding, I saw him finally “get” his sucking down for the first time. He only did it for about a minute but it was like watching a newborn (vs. a preemie) suck a bottle…. for a minute!! I was crying and praying and trying to pay attention to what he was doing all at the same time. It was a beautiful moment.
Wednesday, September 26th
Titus really turned around over night and started sucking down a decent portion of his bottle. His Dr. decided that today could be his ad-lib day!! This was sooner than we had expected (I was praying for Thursday, but realistically thinking Friday). At about noon they removed his feeding tube. He did fairly well throughout the day, but wasn’t rocking it the way that we had hoped he would. However, all he needed to get was 80% of his goal.
Titus also had his circumcision this day, which was a little worrisome because some babies, after being circumcised (particularly preemies we were told) will go on an eating strike…. this we obviously did not want.
Thursday, September 27th
We called the NICU first thing in the morning to see how he did overnight and his numbers were still so-so, fairly good, so we knew it could go either way on if they would let us bring him home or not.
We arrived at the NICU around 9:30 and saw the doctor soon after. She said as long as he passed his 90 minute car seat apnea test that he was free to go, that though he was shy of his goal, he did exceed the 80% – he ate 264ml of his 310ml goal which put him at 85%!
He passed his car seat and hearing test no problem and at 1:30 we were ready to go home!!!
The kids had made some signs for Titus I believe the day (or day after) he was born, waiting for him to come home…. They were so excited to finally put them up and were waiting for us in the yard when we pulled up.
Oh… yeah…. but how do you say no to first kisses????
It was such a GREAT DAY!!!
Friday, September 28th
We had an appointment with our normal pediatrician at 9:00am, Titus weighed in at 5 pounds 1 ounce, passing the five pound mark for the first time!!
The pediatrician was going to have us come in again next week for an appointment until we told him we had bought a baby scale, to which he said he would call us on Monday for his weight and that as long as it was good, we could wait a MONTH to come in!! More great news.That afternoon I gave Titus his first bath at home, while dad and the kids were at the store. I had wanted to wait, knowing that Treyton really wanted to help with a bath, but we’re learning that you really have to work around Titus’ schedule and not your own, otherwise, he exhausts his energy and doesn’t eat as well.
Saturday, September 29th
I have honestly appreciated bringing all of my babies home from the hospital, and rejoiced in knowing that a new normal was about to start, but obviously this time my gratitude has multiplied in a HUGE way. Having our family all together, and watching us start to get the hang of having a baby around, again….. it’s such a gift. It is literally a full time job keeping up with his eating – he is still exclusively bottle fed so I’m bottle-feeding (which still takes about 25-30 minutes to get down 1.5 ounces) and pumping. However, it’s totally worth the work, knowing that he’s getting my milk. And we still have our moms rotating through to help us out for another week (thank you moms)!! His eating today has picked up a lot since the afternoon and it is taking a lot less time to get down a bottle (almost half). I’m thinking on Monday, once his sucking is even more established trying to transition him to the breast. The kids have been awesome. I’m not thinking jealousy is going to be our issue, he is constantly fought over and begged for. It’s such a blessing to see each child love and protect him in their own way.
We are so blessed beyond measure. To God be the glory!!